Who we are

We are an informal, open, autonomous, global network of people living with Amyotrophic Lateral Sclerosis (ALS) or Motor Neuron Disease (MND) who share a common commitment to thoughtful, respectful, ethical, evidence-based deliberation and dialogue on ALS/MND policy, research, care, and advocacy. We are a patient-centric think-tank – a site run by and for people living with ALS/MND – but we welcome and value input and ideas from all. We are especially interested in serving as a global forum for the community of people living with ALS/MND and caregivers, as too much of the current dialogue and activism on ALS/MND is US-centric.